Seventeen Days Since My Veins Were Filled with Poison

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I recently went though my first round of chemotherapy for Waldenstrom’s macroglobulinemia (lymphoma), and I was prepared to dump on the world six pages of my experience and disparity. I decided no one wants to read that much content. Instead, I wrote a poem that reflects my feelings on the chemotherapy process. Cancer sucks. No doubt about it.

Seventeen Days Since My Veins Were Filled with Poison

 

Seventeen days

Since my veins were filled

With

Poison.

 

Funny how you need

Poison

to kill

poison.

 

Chemotherapy –

The Mother

Of all

Duckers.

 

Thirst,

Sweat,

Heart palpitating,

Throat closing,

Vomiting,

Gut wrenching,

Belly swollen,

Cracked lips,

Crashing,

Unrecognizable

Self….

 

Hopeless,

Tears,

Zombie skin,

Sunken eyes,

Anxious,

Dehydrated,

No taste.

 

Lifeless.

 

Crawling back

To reality….

Slowly,

Steadily.

 

A magenta-hued sky

over a bronze meadow,

The soft brush

of a cat’s whiskers,

The aroma of a caramel-scented

sugar cookie candle,

The gaze of a

saw whet owl

penetrating your soul,

The Snoopy and Woodstock

animated mailbox –

 

These are the medicines

of life…

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Folly Beach Dances – October events – South Carolina

Good things are coming down the pike!

We’ve got a full schedule for our book tour and events, and will be in Folly Beach real soon promoting FOLLY BEACH DANCES – The Infinite Rhythms of a South Carolina Seashore.

Here’s a list of some upcoming events in October.  You can find a full event listing at the official FOLLY BEACH DANCES website

We’re currently in the process of shipping more books to Amazon, but you can order from the book’s official website above. Books will be autographed and will include a surprise with each order in September and October!

 

October 19, 2014 Black Majic flyer 8

Folly Beach Dances booksigning

Black Majic Cafe

10:30 a.m. to 12:30 p.m.

103 West Erie Avenue

Folly Beach, SC

 

October 18, 2014

Follypalooza Cancer Fundraiser

Stop by our booth.  We’re sharing a booth with author, Diann Shaddox, “A Faded Cottage”!

11 a.m. to 5. p.m.

Center Street

Folly Beach, SC

 

October 15, 2014

Folly Beach Branch Library

Folly Beach Dances booksigning

2:30 to 3:30 p.m.

55 Center Street

Folly Beach, SC

 

October 14, 2014

Hollings Cancer Care Family Support Group Meeting

(Guest Speakers – Sheree and Russell Nielsen)LLS cancer care meeting oct 14 charleston001

86 Jonathan Lucas Street., Room 121

Charleston, SC 29425

11:30 a.m. to 1 p.m.

 

 

 

 

 

 

October 8, 2014

O’Fallon Photo Club Meeting

The book’s journey – Folly Beach Dances

7 p.m.

Renaud Spirit Center

2650 Tri Sports Circle

O’Fallon, MO 63366

 

 

 

A World Vision sponsor child from Thailand thrives

A letter I received in the mail last week from World Vision International thanked my husband and me for helping our sponsored child Pattraporn over the past five years.  Apparently, our generous support made a huge impact in her life.

The letter went on to say that her community, Phan Thong, was concluding its final stage of development and completed its goals of becoming self-reliant.

It’s sad to say goodbye to a child that we’ve come to know and love.

A card and envelope was enclosed to pen her a farewell letter.  This mailing procedure was a little different, as we wrote our home address on the back flap of the envelope.

In my eyes, World Vision, is amazing.  I watched Pattraporn’s development from an impressionable young girl blossom into a happy teenager.

In my first correspondence to Pattraporn, I enclosed two photos (one of a colorful fish taken while scuba diving), three beaded bracelets and a ribbon.  Although, the children are able to receive gifts, World Visions suggests nothing of real value.  Much to my surprise about a month later, I received a brightly stamped World Vision envelope.  As I unfolded the orange-bordered stationery, I gazed at the signature line.  Pattraporn thanked me for the letter and the gifts sent her.  The tiny gesture of beads, ribbon and photos spoke volumes in her mind.

The young girl lived by the sea, and liked reading and movies.  While reading her return letter, I choked back a tear.OLYMPUS DIGITAL CAMERA

“I wish you could visit Thailand sometime, and me here.”

She ended he letter “I wish you and your family much happiness.  God Bless You.”

What a sweet, thoughtful child.

The recent correspondence from World Vision offered me the opportunity to sponsor another child.  I declined, channeling my efforts into another vision that hopefully will soon come to fruition.

Someone once said, “When one chapter ends in your life, another one begins.”

A photography book, about a special beach, in collaboration with my husband, is a personal project of mine and the next chapter of my life.  I’ve even rallied six local award-winning women authors to contribute to the book.

The monthly dollar amount previously sent to World Vision will now be channeled to the Gateway Chapter of the Leukemia and Lymphoma Society. After a meeting with Deb Kersting, Director, I made a pledge verbally (and in writing) to donate a portion of the proceeds to her organization after the book is published.

Some of you may know have come to know me by browsing the pages of my blog. I have low-grade lymphoma.

This book will be dedicated to many.  Those with physical ailments are first and foremost in my mind.

And if you get the chance, sponsor a World Vision child.  It’ll make a difference in your life.

Dear Kindred Spirit…

OLYMPUS DIGITAL CAMERAMay 22, 2013

Dear Kindred Spirit,

It’s not a coincidence that God brought me to you.

In April, I visited Sunset Beach for the first time.  I heard how Bird Island was a hidden gem!

That day I meandered down the beach, and a little boy threw a bucket of water on me. His actions were followed by an apology…..by his mother.

Sitting on her beach chair, she relaxed reading a book.

We conversed.

“First time here?”

“Yes.”

“You should check out the Kindred Spirit bench on Bird Island.  People from all over the world visit the bench and leave their thoughts and prayers in the mailbox’s journals.”

OLYMPUS DIGITAL CAMERAA salty tear trickled down my cheek.

Being here now is a peaceful feeling.  I’m sure it was meant to be.

As a writer, this spot moves my inner soul.

OLYMPUS DIGITAL CAMERAI’m here with new friends Jacqueline and Sandy who are so important to the Kindred Spirit.  Today, they hoisted a flag for Memorial Day and all the veterans we’ve lost over the years.  I call them the Kindred Spirit angels.  They retrieve the journals and send them back to their secret originator.

Jacqueline and Sandy with new flag

Jacqueline and Sandy with new flag

OLYMPUS DIGITAL CAMERAOLYMPUS DIGITAL CAMERAI’m sure I’ll be back.

There are so many people here, now, sharing the spirit.  Everyone is connected to each other.

I pray that my lymphoma never gets any worse than it is, my marriage to grow stronger, and God to watch over my ‘child’ animals, family and friends.

So long for now Kindred Spirit,

Sheree Nielsen

Missouri

Jackie and Sandy with Max who hoisted the flag Memorial Day 2012.

Jackie and Sandy with Max who hoisted the flag Memorial Day 2012.

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